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Adenomyosis Support

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I need help [May. 10th, 2012|08:28 pm]
Adenomyosis Support
Hi Everyone,
My names Katherine and im 19 (20 in august)
I have just been diagnosed with Adenomyosis and i'm not too sure what to do, as I am so young and the age range for this disease is 30+ and have already had children.
I would like a family of my own in the future but have been told to start it early, what exactly does that mean? now?
I wouldn't mind having a family next year, I have been with my partner for four years, but everyone agrees that im too young right now as so do I, but if it helps my chances of having a family then should I?
I have had problems since i was 17 and some say it grows and affects fertility and some don't, just mixed emotions and messages.
I am planning to go to university starting in 2013 to do midwifery.
Thought I would get help off people that have the same disease as i do.

Please help and give me some advice, thankyou so much!!

[User Picture]From: tig_b
2012-05-10 09:21 pm (UTC)
It's difficult to advise someone else about having children.

It used to be that doctors would advise women with endometriosis or/and adenomyosis to get pregnant to reduce the symptoms - ironic as for some women it made it worse, for some it wasn't an option.

Why does your doctor advise this? What are the treatment options?

I looked at some of the current information - and it reads like old information about endo, ie the mistaken beliefs that prevented thousands of women getting treatment. I think that the belief that it only affects older women (as was the standard belief about endo years ago) is because it doesn't get diagnosed earlier.

If I was in your position, I'd only consider changing plans and trying to get pregnant early if it was very,l very important to me to carry a child. I think it's a hard choice, and maybe no 'right' answer as any option has a risk.

Have you tried using a decision tool to help draw out your main preference?
One I use:
Pros and cons if you go for pregnancy
pros and cons if you don't
in a 2x2 grid.

list everything you can think of, then try to mark the ones that are most important for you, and for both of you?

I hope this helps a little.
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[User Picture]From: zebra_bunny
2012-05-10 10:24 pm (UTC)
I was diagnosed when I was 21. I had my first baby this past January (I'm 28 now). The doctor who diagnosed me said I shouldn't have any issues trying to conceive, so I think it depends on each individual case. Did your doctor say anything about you possibly having issues? If you're concerned or confused, then ask him/her.

Welcome to the community.
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