|Recently diagnosed with adenomyosis
||[Nov. 14th, 2010|06:32 pm]
23 years old, with a medical history that has gone haywire since the beginning of this year. My longest period record happened this February; a 55 day period (which caused me to faint, require treatment for severe anemia and iron deficiency, and nearly 3 liters of menstrual blood loss). The pain was horrifying, changing my clothes every few hours was horrible, using plastic bed sheets to avoid washing linens every day. Ultrasounds, hormone tests, thyroid tests, vaginal screenings. No doctor could tell me what was going on. When the bleeding finally stopped, i was put on Lo ovral to "control" the abnormal bleeding. In 6 months I gained over 30 lbs thanks to those BCP's . I was pissed. I wanted answers, real treatment and a diagnosis for whatever was happening. |
One doctor suspected adenomyosis (by just a basic finger exam and pushing on my abdomen). He told me nothing was available yet in terms of a cure or permanent treatment, Mirena, constant BCP's, and eventually a hysterectomy which at 23 is very dangerous. "you have to wait it out, maybe sometime soon, something else will be available" he said. I wasn't convinced. So i looked for another doctor.
I was diagnosed with adenomyosis about 10 days ago. It was so large, i could see on the ultrasound monitor the bulging abnormalities inside my uterine tissue. T he options: Lupron if i wanted to try having a pregnancy, Mirena if i wanted to have temporary relief for up to 5 years, or an Adenomyectamy, removing the lining and the growths inside the uterus with uterine reconstruction afterwards. This surgery means I have my system, my ovaries, my hormone levels all normal. I can't bear my own children due to lining removal, but surrogacy is an option.
Right now I'm in the process of setting a date for the surgery. I want people to know there are other options and every woman should be able to keep their reproductive/hormonal system intact. A hysterectomy only should be considered for very severe cases of abnormalities and cancer. We're making decisions based on doctors who do not have all of the up-to-date information on what's available and ruining our health in the process by trusting them.